Follow on from yesterday’s blog

I had another thought following on from the workshop in London which I spoke about yesterday……..

During the discussions, the researchers still seemed to be in the realms of the ‘elderly’ when they spoke of dementia and the types of trials they were undertaking.

Whilst the elderly are undoubtedly a signficant group, I highlighted the fact that, an ageing workforce, combined with younger people being diagnosed, would pose different challenges for the future and it would make sense to start asking those questions now. It will be a whole new generation of people with different needs and requiring different types of research. For example, more studies are needed on ‘working well’ with dementia and the needs, not only of those working with dementia, but also a need to support those who are trying to juggle work and look after someone with dementia. You may or may not remember but I’m due to meet with NHS Employers with regards to two Toolkits they are working towards – one to support employees with dementia and the other for carers. The meeting is now taking place at the beginning of February so watch this space………..

I’m currently part of the research being carried out by Dr Louise Ritchie from the University of the West Of Scotland into dementia in the workplace and they’re in the process of asking for more funding for this to develop further. I hope they’re successful. There are lots of good engagement projects coming out of Scotland.

I also think my generation will have different expectations of care homes in the future and this could also make for a very interesting study in preparation for future needs. The fact that the National Institute for Health Research is planning to consult with those affected by dementia can only be good and may bring about more ideas and thoughts on future needs.

We’re heading in the right direction but so much more needs to be done, but this can’t be achieved without more talented individuals being attracted into dementia research and people with dementia openly being offered the chance to take part in research.

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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