Reflecting on a Life Changing Year – Part 2

Following on from yesterdays blog:

In July I hadn’t realised how little money was being spent on research into the care, cure and prevention of dementia:  I joined the Alzheimer’s Society’s wonderful group of Research Network Volunteers and Mentoring team (http://www.alzheimers.org.uk/site/scripts/documents_info.phpdocumentID=1109) . The volunteers evaluate proposals from researchers seeking funding and the mentors support those successful in getting funding throughout their journey. I should be getting my first mentoring assignment in the New Year and have been asked by Professor Jan Oyebode (Professor of dementia at Bradford University) to join them as a member of their ‘expert by experience’ panel for a project they’re hoping to receive funding for in October –watch this space

I hadn’t realised how hard it was to find research to actually be involved in: this year sees the launch of Join Dementia Research (https://www.joindementiaresearch.nihr.ac.uk/) This is a database which will allow anyone to express an interest in taking part in dementia research. I’ve attended the media training run by National Institute for Health Research, DeNDRoN and Alzheimer’s Society and am actively involved in promoting the database – watch this space

Taking part in research wasn’t on my radar this time last year:  in September I joined research being carried out by Dr Louise Ritchie from University of West of Scotland entitled ‘Dementia in the Workplace’. It’s been a joy to take part – Louise even visited me at St James Hospital, Leeds, where I work,  where she not only interviewed me but also my work colleagues.
I’m due to start clinical trials into the use of an antibiotic drug and its’ effect on dementia next week if I pass all the first tests for applicability– watch this space

Part 3 to come tomorrow!

http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200422

HelpUsBeatDementia_Banner_ResearchPage.jpg

 

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About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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