People with dementia making a positive contribution to change – Part 1


I went to my local dementia forum for the first time last week. It’s held during the day, so last week was the first opportunity to attend as I was on leave from work.

I arrived late (I’m never late!) as I had trouble finding the cafe but once inside I felt like I’d always been there – another WOW moment:) The session is for people with dementia who want to make a difference – a voice for those with dementia. It was led by Emily Abbott who is heavily involved in dementia awareness, and the forum is part of DEEP – The Dementia Engagement and Empowerment Project – advertised as a ‘growing band of over 40 dementia involvement groups across the UK’:


The people, as always, were wonderful and it soon became apparent that their voices had not only been heard but listened to. York City Council had consulted them on new signage for tourists for the city. They’d thrown out their first offering as they were too confusing for anyone, let alone those with dementia. But their views had been listened to and their second offering was much clearer and user friendly. The council have now asked the group to offer up suggestions as to the best place to place to position the signs.  Because we know the city so well we have invited a similar group,  the EDUCATE project in Stockport, Greater Manchester, which encourages people with dementia to get involved in awareness-raising in the local community and beyond.

It will not only give us a chance to meet another similar group of like minded people but will provide a better test of the maps for getting around the city.

What a fine example of including users in decision making:)

About wendy7713

On the 31st July 2014 I was diagnosed with Young Onset Dementia. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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