Getting the right medication

It’s 3am when I’m writing this blog – don’t worry, I won’t click ‘publish’ until a sensible hour as you may stop reading if email alerts come through in the middle of the night!

I’m taking Donezepil – a drug they believe will slow down the progression of Alzheimer’s –  it has a long list of  side effects including insomnia, hallucinations and tiredness……..well, they were right there. I really, really, really am grateful to those marvellous researchers who developed the drug. I just wish there was a way  you could produce medication without such side effects . I know that’s an obvious statement and I’m sure there will be biochemists out there chuntering, ‘if only she knew’!! There will be amazing people out there beavering away at reducing side effects I know, but to experience them makes living with a  condition even more miserable. At 3am in the morning, the advantages of taking a wonder drug pales into insignificance when compared with the side effects being experienced at the time, so I’m sorry if I sound ungrateful.  It’s always made me laugh when medication for the elderly and confused has ‘diarrhoea’ as a symptom – the very thing that can make life miserable for the individual and carer alike..

Whilst I’m glad that all the talented individuals out there are dedicated enough to work on finding new drugs for dementia, it would be really useful if more work could be done on reducing side effects that, at this already difficult time, exacerbate the problem. Exhaustion through lack of sleep, continual headaches, insomnia etc. etc., none of which were present before, now cause new problems.

I realise there will be perfectly sound scientific reasons why you can’t have  drugs without side effects and the side effects may appear minor compared with the disease, but, oh, for the best of both worlds to exist. The talented individuals who tirelessly work towards new discoveries would get a HUGE brownie point from me (and I’d even bake them my infamous lemon drizzle cake)  if they could work on reducing side effects associated with drugs. End of 3 am rant………tomorrow’s another day……….or is it today?

PS: On a lighter note, I’ve started a gallery to share photographs of people and places I love. You can find it next to the ‘Home’ button 🙂

About wendy7713

On the 31st July 2014 I was diagnosed with early onset Alzheimer’s. I may not have much of a short term memory anymore but that date is one I’ll never forget. I’m 58 years young, live happily alone in Yorkshire, have 2 daughters and I’m currently still in full time employment in the NHS. However, I’m now in the process of taking early retirement to give me a chance of enjoying life while I’m still me. I've started this blog to allow me, in the first instance, to write all my thoughts before they’re lost. If anyone chooses to follow my ramblings it will serve as a way of raising awareness on the lack of research into Alzheimer's. It will hopefully convey the helplessness of those diagnosed with dementia, as there is no cure – the end is inevitable. However, I’m also hoping I can convey that, although we've been diagnosed, people like me still have a substantial contribution to make; we still have a sense of humour; we sill have feelings. I’m hoping to show the reality of trying to cope on a day to day basis with the ever-changing environment that dementia throws at those diagnosed with the condition. What I want is not sympathy. What I want is simply to raise awareness.

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