It’s 3am when I’m writing this blog – don’t worry, I won’t click ‘publish’ until a sensible hour as you may stop reading if email alerts come through in the middle of the night!
I’m taking Donezepil – a drug they believe will slow down the progression of Alzheimer’s – it has a long list of side effects including insomnia, hallucinations and tiredness……..well, they were right there. I really, really, really am grateful to those marvellous researchers who developed the drug. I just wish there was a way you could produce medication without such side effects . I know that’s an obvious statement and I’m sure there will be biochemists out there chuntering, ‘if only she knew’!! There will be amazing people out there beavering away at reducing side effects I know, but to experience them makes living with a condition even more miserable. At 3am in the morning, the advantages of taking a wonder drug pales into insignificance when compared with the side effects being experienced at the time, so I’m sorry if I sound ungrateful. It’s always made me laugh when medication for the elderly and confused has ‘diarrhoea’ as a symptom – the very thing that can make life miserable for the individual and carer alike..
Whilst I’m glad that all the talented individuals out there are dedicated enough to work on finding new drugs for dementia, it would be really useful if more work could be done on reducing side effects that, at this already difficult time, exacerbate the problem. Exhaustion through lack of sleep, continual headaches, insomnia etc. etc., none of which were present before, now cause new problems.
I realise there will be perfectly sound scientific reasons why you can’t have drugs without side effects and the side effects may appear minor compared with the disease, but, oh, for the best of both worlds to exist. The talented individuals who tirelessly work towards new discoveries would get a HUGE brownie point from me (and I’d even bake them my infamous lemon drizzle cake) if they could work on reducing side effects associated with drugs. End of 3 am rant………tomorrow’s another day……….or is it today?
PS: On a lighter note, I’ve started a gallery to share photographs of people and places I love. You can find it next to the ‘Home’ button 🙂